Children's Care Fund Testimonial

Liam Portrait

Liam's Mother

Liam is nine years old and going into fourth grade in the fall. When Liam was 5, he was diagnosed with neurofibromatosis 1 (NF1).

A relatively common complication of this disease is tumor growth along the optic nerve pathway, which can lead to blindness if left untreated. Unfortunately, Liam not only had a tumor on his optic nerve but also started to grow, threatening his vision. 

In August 2018, Liam started chemotherapy to prevent the tumor from growing any larger. Not only did his tumor stop growing, but it also shrunk significantly. After a year of chemotherapy, Liam was able to stop treatment, and his tumor has continued to shrink over the past year. In fact, his oncologist wasn’t even able to see the tumor in his most recent MRI. 

Thanks to all the care that Liam received from the amazing team at Children’s in Pittsburgh, he continues to do very well. Liam is able to see his Pediatric Neurologist to receive ongoing treatment for his NF1 here in Erie at the Children’s Specialty Care Center.


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